S was Diagnosed in 2003, when he was 3, with High functioning autism. Now he comes across as any other boy, makes jokes, plays games and watches spongebob. Its not apparent he has a difficulty so people either think he is naughtly, has odd ways, or do not take us seriously.
He is like any other boy...and he has autism.
E was born in 2005, and does not have autism. He acts in ways that I had no idea about, laughs at my jokes, acts like a clown, plays with toys and watches spongebob too.
He is like any other boy...just like his brother
This is my musings, experiances, and anything else as the mum of one son with autism, and one son without it. I hope it makes a difference.

What the Dr. said....not alot!

Just a quick update on the trip to the Doctors.

Basically he said I have to turn " the Dark " into a positive so that S is no longer scared of the dark. Well, blow me....what an insight I would never had thought of that!! (sorry....sarcasm!)

I asked him about a referral to sort out the dark and anxiety issues, it was ignored. I have to make the dark fun for S so that it no longer scares him. Well I hardly sit there going " oh yes Sam being in the dark is very scary so I'm not surprised you don't like it." do I !!!

I always reassure him that there's nothing to be scared off: nothing will get him and nothing will get in the house etc etc etc.

Is it me? Am I making more of the problem that it is? I'm beginning to think so. I know its not a life threatening problem but if S has said he is getting fed up of being scared of the dark and if I'm noticing that his anxiety levels on the whole seem to be rising then I think it IS a problem and I need more help to rectify that, as I have done all I can do on my own.

I just don't seem to be getting the help that I need and I'm not sure why.


Gill said...

They never seem to say alot I am afraid! My son doesn't have autism he has cerebal palsy which affects the left side of his brain, making him very right brained. He gets quite obsessive about things and suffers a lot from anxiety. When he is anxious he gets obsessive about whatever he is anxious about and very debilitaing for him. We were very lucky in that we were refered to a psychologist about 4 years ago (when he was 10) who gave us, and him, some cognitive behavioural therapy techniques to work on. I don't know whether CBT would be appropriate for your situation. 4 years down the line we can now look back and see how far we have come, one step at a time (with a few back at times). We were very lucky that his schools have been very supportive and he has an amazing teaching assistant. Don't give up, keep badgering your GP, paed, or whoever. You deserve some support.

Robert said...

GPs have only a limited knowledge of autism & its effects. Advice with insight is unlikely to come from there. If you try hard, you should be able to access a specialist psychologist. ...Eventually!

I like your blog design!

Casdok said...

I was going to say the same as Robert. Anxiety can be a huge problem with our children.

tracy_tp said...

Thanks Gill, Robert and Casdok. I dont normally take him to the Gp but was told to, to get a referal. I normally ring the Child development center for advice and an appointments, but we have not gone for over a year now. Im going to a Autsim suffolk support group in June so I will see if they have any anxiety advice, and any thing I do find out that could be of help to anyone I will post on the blog. I will also ask them about CBT.
At the moment Im just going to see how he goes with the anxiety in the next few weeks.

Casdok said...

I use Lavender essential oil at night, helps to destress my son (sometimes!) but works wonders on me!

Wasted Potential said...

I hate to say this but most GP's are clueless. They are simply there to get through their surgery appointments as best they can and "complicated" issues are just an inconvenience them.Go back to the Dr who diagnosed your son and insist on a referral to a specialist. Unfortunately you may have to make a nuisance of yourself.

smartiej said...

I am an advisory teacher so dont have as much expereince as you parents but meet quite a few kids w/ asd so look up lots of info... am an EFT practitioner which I know works with children with asd as they are a nervy bunch on the whole. Look up www.emofree.com and see if you're interested then we'll look for a practitioner near you who knows about asd/kids!
Julia x

Anonymous said...

Love your blog - its very enlightening reading your experiences with Sam.
Have you every tried Social Stories?

Tilly said...

Hi there, I'm very late coming to this post but I've just found your blog and I've been reading through your old posts. We have just found out that our 4 year old had Asperger's. He used to be fine but has recently become very afraid of the dark. We put a nightlight in his room and told him it was a 'sleep fairy' who was going to look after him. Worked a treat. Not sure whether it would work for you since your son is much older. Worth a try if you're not already using a nightlight (which I'm sure you probably are).

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Im a full time single mum of 2 boys. My eldest son is 9 and has autism, my 4 year old does'nt! im studying creative writing with the ou, and i'm a sci fi geek...sorry!

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